Resources for patients
We have put together a library of resources for people living with CRPS. Some of the resources have been created in association with us or our members, whilst others are useful information that we have gathered from other pain-related organisations. Simply click on the title of each individual item to find out more. The links will direct you to the relevant videos, websites or downloadable versions. Additional resources will be added over time, so do check back for updates.
Apps
A set of twelve videos, teaching skills to help self-manage your pain. They include information on pacing, relaxation, setting goals and managing setbacks. Developed by expert patient and coach Pete Moore.
Self-help App for the Mind (SAM)
Informed by clinical best practice and academic research, this non-profit wellbeing app is designed to help you monitor and manage your mental health. Developed by the University of the West of England, working with Bristol-based digital studio MyOxygen.
This non-profit self-help CD has been created for people with persistent pain - listen or download free of charge. Created by Neil Berry, a Consultant Clinical Psychologist in Southampton.
Leaflets
Living with Complex Regional Pain Syndrome
Self-management advice for people following their initial diagnosis and treatment. Produced by Pain Concern, in partnership with the CRPS Network and CRPS UK.
A factsheet covering the main symptoms of CRPS, diagnosis and treatment options. Produced by the Royal Osteoporosis Society, in consultation with key members of the CRPS Network.
Podcasts
NIHR Be Part of Research podcasts
A series of informal conversations with researchers about interesting research findings, covering a variety of topics and conditions. Created by the National Institute for Health and Care Research (NIHR).
Airing Pain radio programme and podcasts
Choose from over 140 episodes, covering different pain topics. Informed by patients, health professionals and international experts. Transcripts are available for all programmes. Created by Pain Concern.
Listen to a two-part conversation about persistent pain with an Advanced Physiotherapist Practitioner. Produced by the Bath Institute for Rheumatic Diseases (BIRD).
Videos
“What is pain and how does it work?”
We all know what pain is. But why does it exist? And what's it like to live with chronic pain? This animated claymation documentary was made in partnership with The Royal Society and BBC Ideas.
The experience and impact of having CRPS
This video has patients and caregivers talking about their experiences, as well as doctors discussing the importance of early diagnosis. Created by the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA).