Our mission statement

Who are we?

A network of health care professionals and researchers who are interested in research, education and promoting best care for patients with Complex Regional Pain Syndrome (CRPS). We are not a patient support group.

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Our Story

We formed in 2008, with a small group of people who were frustrated by the lack of progress in the understanding of the causes and course of patients who had been diagnosed with CRPS. Limited treatments and information for this pain condition were available and we believed that by working more closely together we would be able to achieve more.

 

Our membership has now increased to more than 50 colleagues. We have guided and supported new researchers, published new patient information literature and built up an extensive portfolio of research publications. As a Network, we represent expertise and interest in CRPS across the entire lifespan: children, adolescents and adults.

 

Three specific achievements have enabled us to raise awareness nationally and internationally:

• Development of a national registry for adults with CRPS

• Publication of the Royal College of Physicians UK Clinical Guidelines on CRPS

• Development of the CRPS ASSIST app, on behalf of European Pain Federation EFIC. This is a free European app for therapists with little or knowledge about the condition.

 

People living with CRPS have worked with us on these and many other projects. They help ensure that our work is focused on the things that matter most to patients.

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Our Aims

• Raising awareness and understanding of CRPS amongst health professionals, patients and the general public.

• Developing or contributing to information that reflects current clinical practice and research.

• Developing or contributing to identified educational and training needs for health professionals.

• Facilitating collaborative research projects in CRPS and linking this to patient care within clinical practice.